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Medical Information Links

Medline Plus – Behçet’s Syndrome An excellent site sponsored by the U.S. National Library of Medicine and National Institutes of Health, this site has a brief description of the disease with reliable links to other sources for more information.

The American Behçet's Disease Association (ABDA) Good descriptions of the disease, treatments, research and practical advice and support, can be found.

Also at the ABDA site, The Current State of Behçet's Disease, a free podcast lecture given by Dr. Hasan Yazici. This talk was presented to ABDA members on 15 December 2006 at the Behçet's Syndrome Center in New York. You will need access to iTunes or a similar MP3 system to hear the podcast.

Behçet's Syndrome Society The official UK patient support group for people with Behçet’s disease. There is a very good medical section with a topic on “Information for Patients”, which includes information about headache in disorders that are similar to Behçet (which explains why Behçet’s is commonly misdiagnosed), a link to a medical review article and many other interesting sections. Well worth a look.

The Behcet Syndrome Center at NYU Hospital (USA) A dedicated medical centre for the evaluation, diagnosis and treatment of Behçet patients. Part of New York University Hospital, Division of Rheumatology. The centre opened in March 2005.

Medsafe New Zealand's Medicines and Medical Devices Safety Authority; Medsafe provides safety information about medicines available in NZ. (Read more about Medsafe and Remicade.)

Clinical Trials

ClinicalTrials.gov Click on ‘Background Information’ to be taken to a window with topics, such as “Understanding clinical trials”; includes a glossary of clinical trial terms.

Australia New Zealand Clinical Trial Registry (ANZCTR) This site has an easy to use search option to identify trials of interest.

Other

Yahoo! Discussion group for people living with autoimmune disorders. Joining an online forum is a matter of personal preference. Remember that it is always best to refer to your specialist or GP for clinical advice.